Chronic illness - is it that bad?

Joanna Hinc
Jun 18, 2023
2 min read

Updated: Jul 3, 2023

Is chronic illness really the end of the World? Sometimes it can look like that, but the worst thing you can do is to give up...

Text from the video:

Hi, Have you ever been unable to use your own hands? I have and I admit it was terrifying. Practically over one week I became dependent on others and didn't know what to do with myself. I couldn't do anything, except maybe for the constant thinking. Even more, the hospital set my appointment for a month later and I was left feeling helpless... but what to do? I waited anxiously and at the same time blocking out thoughts that I would never be able to move my hands again. Maybe it was shock mixed with panic, I don't really know… but I don't remember much from those days anymore. What I remember from that extremely long month is that it was getting worse. My right leg started behaving like my arms, and my ribs began compressing my lungs. I was afraid that I wouldn't be able to breathe. It was bad. After I finally received the help, I had, ahead of me, a very long and difficult road to recovery and the various twists and turns along the way. I understand how much work and perseverance it takes to get back on track. I also know that it is not always possible to fully recover. So many of us struggle with physical limitations, fatigue, pain, financial strain, difficulty finding an employment, lack of support or understanding from other people, social isolation, difficulty accessing healthcare, mental health challenges, loss of independence, stigma… yes, that one too - when these problems are not visible. I've been wrestling with my thoughts for a couple of months and it hasn't been an easy decision, but I've finally come to the conclusion that my whole experience has a significant value. I know how shitty it can be to be ill, but at the same time I got my problem under control and I think it would be worth of sharing "how". Maybe this will help people with chronic illnesses to cope with their problems too and let them know that they're not alone. It is a noble goal, but I can't do it on my own. Especially as my story is just one of many. And I would like to engage you all in it too, build a community of people who want to help one another. So, please follow me and share my content with your friends and family, and if possible, support my work so I may continue doing it. Thanks for listening and bye for now!